To our Friends here at Sugarloaf Golf Club,
PLEASE take a few minutes to read the information below. Our friends Carl & Jen Kapes have two lovely children who have been diagnosed with MPS. Since it is such a rare genetic disorder, you probably have never heard of it and that’s one of the reasons why Wayne & I are asking for your help! We are hosting a “BEAT MPS” Scramble on Saturday October 2nd and we hope you can join us. All of the information is below. IF you can’t join us for the golf tournament, please consider coming to our post-tournament Penn State vs Iowa Tailgate fundraiser party! We’ll have a big screen TV and a true tailgate at halftime. All proceeds will go directly to TEAM SALFILIPPO. Refreshments & tailgate food will be available. Entry is FREE, but please remember we will accept donations for refreshments!
Please call the Pro Shop for more info: 570-384-4097
Open your heart and help us beat MPS!
Please join our family as we raise money to advance education and research to improve the quality of life for the children affected by this disorder.
My children Ryan (5 years old) and Brayden (2 years old) Kapes have been diagnosed with MPS Type III-A, better known as Sanfilippo Syndrome. It is a genetic lysosomal storage disease caused by the bodyâ€™s inability to produce specific enzymes. Normally, the body uses enzymes to break down and recycle materials in cells. Individuals with MPS are missing the enzymes that make this process possible, causing progressive damage throughout the body, including the heart, bones, joints, respiratory system and central nervous system.
While not evident at birth, symptoms develop in early childhood as more cells become damaged by the accumulation of cell materials. It is estimated that 1 in 25,000 births in the US will develop some form of MPs. At this time, there is no cure or treatment and children seldom live to reach their twenties.
The Team Sanfillippo Foundation is a non-profit medical research foundation that was started by a group of parents whose mission is to find potential therapies that can bring hope to families and children touched by this devastating disease. Through our efforts, we hope to pride support through education, research & therapies to help improve the quality of life for children affected by this disorder.
Carl & Jen Kapes
WE NEED YOUR HELP!
Please join us for a great day of golf for our inaugural
â€œBeat MPSâ€ Golf Scramble
October 2, 2010
We offer volunteer opportunities if you arenâ€™t a golfer and sponsorship opportunities. Please find us on the web at:
Saturday, October 2nd, 2010
Sugarloaf Golf Club
11:30 Shotgun Start
Registration & refreshments start at 10:30
Entry Fee: $100.00 per golfer
Includes refreshments all day, greens fee, cart & dinner
PLUS Penn State vs. Iowa â€œTailgate Partyâ€
â€œBEAT MPSâ€ Scramble Application
Make Check Payable to: Team Sanfilippo Foundation (Fed Tax ID # 26-2972164)
Mail Entry To: Beat MPS Scramble
c/o Carl Kapes
3204 Romilly Road
Wilmington DE 19810
Post-Tournament Silent Auction
featuring the following items:
*** Merion Golf Bag
*** Merion Stone Encased Coaster Set
*** Merion Ceramic Mug
*** Oakmont Sterling & Cut Glass Mugs
*** Oakmont Flag
*** Oakmont/Adidas Climacool Polo & Hat
*** Augusta National 12th Hole Framed Painting
*** Augusta National 10th Hole Framed Painting
*** Robert Trent Jones/Cornell University Polo
*** Hershey Mills foursome (West Chester PA)
*** (4) Yankees Box Seats (2011 game TBD)
*** Cubs Tickets & Olde Elm Foursome (Chicago)
*** Somerset Hills threesome w/Pro (Bernardsville, NJ)
*** Huntsville Golf Club foursome (Dallas PA)
*** Yahnundasis Golf Bag
*** Yahnundasis Foursome (New Hartford, NY)
*** 26â€ Samsung LCD Television
*** Odyssey White Hot XG Putter
*** Sylvania Country Club Logo Shirts
*** Titleist 907 Driver
*** Penn State Gift Basket
Plus many, many more items! You do not have to attend the tournament to come to the auction or TAILGATE PARTY.